Sunday, 1 May 2016

Tell Me Your Story: Toya Terry

Photo of Toya Terry
Toya Terry
My name is Toya Terry. I was born in Cincinnati, Ohio and raised there for a short period of time.

I was diagnosed with Systemic Lupus Erythematosus in 1995, and then I moved to California. When I first moved to California my diagnosis was changed to MCTD (mixed connective tissue disease). Since my first diagnosis, I have discovered that I have the factor V Leiden mutation, pulmonary embolism, ITP (idiopathic thrombocytopenia purpura), anemia, arthritis, membranous lupus nephritis and possibly fibromyalgia.

Aside of that I am the mother of a very handsome and vibrant little boy. My life has been extremely challenging since my time as a young girl. But I’ve managed to make the best of it.

I choose to express my hurt, pain and experiences with lupus through poetry. I wrote a poetry book called, "A Piece of Me".

For more information check out my website:
 We definitely don't get the recognition that we deserve. I'm hoping that you are able to share this with others in hopes that they will better understand our experiences.  Please share and like my page:

Image:  gingerbread men, all different.  Text: Every story of life wiht lupus is unique.  For World Lupus Day 2016, we're taking the whole month of May to share our stories.

Toya is sharing her story as part of our World Lupus Day activities, which are going through all of May (because life with lupus is too big an issue for just one day.)

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