Wednesday, 28 October 2015

Now That's Scary

www.lupus.cheezburger.com
This coming Saturday is Halloween.  That's not something we traditionally celebrate here, but I know all about it from American movies.

Halloween is a time for little kids to put on fancy dress and eat lots of lollies, and for teenagers to be murdered in extremely gruesome ways by masked serial killers.  And there's something about pumpkins being used as decorations instead of as vegetables. (Clearly American parents don't freak out about wasting food, or teenagers. Perhaps there's an over-supply of both.)

I have to admit, I don't think the whole Halloween thing is all that scary.  (Maybe if we did the teenager-murdering thing here, I would have been scared when my kids were in their teens.)

Here are some things that really are scary (at least for people with lupus):

  1. Waking up each day and finding you still have lupus.
  2. Reading the information sheets that go with your medications.
  3. A new symptom you've never had before, and haven't even heard of.
  4. Knowing that someone really is trying to murder you - and it's your own body.
  5. Getting the bill for your month's drugs at the pharmacy.
  6. Finding you're not well enough to work, and you have to live on a Disability Pension.
  7. Comparing what you could do a couple of years ago to what you can do now, and wondering about what you will be able to do in a couple of years' time.
  8. When brain fog hits, and you don't know where you are, what you are doing, or even what day it is.
  9. When your pain levels are so high, the strongest medication you have doesn't make a difference.
  10. Hallucinations.
  11. Realising you are out of pain meds.
  12. Catching a cold and just knowing it will lead to infections - because everything does.


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