Saturday, 5 August 2017

Realistic Pain Scale

Pain scale.
Do you ever find the pain scale used by medical practitioners is a little inadequate to describe what you are actually experiencing?

Pain Scale used by doctors and nurses:

"On a scale of zero to ten, with zero being no pain and ten being the worst pain imaginable, tell me what level of pain you are feeling now."

Realistic Pain Scale for Lupies:

  • Coma/general anaesthetic (How else could we have no pain?)
  • It's good.  (Pain level is low enough that I can convince everyone that I'm not in pain.)
  • I'm fine. (I can convince people who don't know me well I'm not in pain.)
  • It's OK. (I am still basically functional, but there's a limit to the function.)
  • It hurts a bit. (I want to scream, but I'm gritting my teeth and continuing on.)
  • Distracting. (I can't concentrate on anything, because the pain is overwhelming everything else.)
  • Exploding. (Intense pain in just one place.  Like a burst appendix, or childbirth with no pain relief and a great deal of cutting.)
  • Drawn and quartered. (Intense pain in multiple places.)
  • Hit by a bus. (Intense pain in all places.)
  • Dear God, please just let me die now! (Unbearable pain, and if you show me your smiley and grumpy face chart, I will hit you with it.)


  1. Love this! Not listed as having lupus, but have other similar illnesses and hopefully this scale gets shared all over the Internet.

  2. Love your descriptions and will use them tomorrow when I see the doctor.

  3. I love this! I hate the scales. I have never had a child so how much pain is it??? I have no idea how a 5 is different to a 10. this is both funny and a great description

  4. I have unidentified degenerative nerve damage. This is arguably THE BEST description of some of the things I endure. Im sharing this with both my sych and gp Thank you

  5. That is spot on! I have antiphospholipid syndrome with systemic lupus and chronic and most times severe rheumatoid arthritis...I hope you dont mind but I am bn ringing your pain chart with me on my next drs visit.

  6. Hello, I enjoy reading all of your post. I wanted to write a little comment to support you.


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