I hope this note finds you well! I came across your wonderful blog Sometimes, it is Lupus and wanted to reach out to you for assistance for a project.
My name is Jessica, and I work at The Center for Information and Study on Clinical Research Participation (CISCRP), an independent non-profit organization based in Boston, Massachusetts. CISCRP is dedicated to educating the public about clinical research; as part of our mission, we regularly engage with patients through advisory board meetings, global surveys, and workshops to include the patient voice in research endeavors.
At this time, CISCRP is planning to conduct a series of 1-hour telephone interviews among individuals who have participated in clinical trials and we were wondering if you might be interested in this opportunity. During the interview, you would be asked to reflect on your past clinical trial experiences and to provide feedback on patient-facing materials being developed to help guide patient discussions around participation. As part of this project, we are looking to conduct telephone interviews for individuals diagnosed with Lupus that live in Australia that have participated in a clinical trial.
The goal of the interview is not to recruit patients for clinical trials, but rather to learn from patients about their experience and to provide feedback in order to benefit future patients and minimize the burden of clinical trial participation. As a thank you for your time, CISCRP will provide honoraria to those who are eligible and participate in the telephone interview.
Through searching your blog, it is my understanding that you have not participated in a clinical trial, however, I was wondering if you might know of anyone who would eligible and interested in this opportunity. Any assistance you can provide would be greatly appreciated!
Warm regards and thank you in advance for your time and consideration!
Research Associate, Research Services
Center for Information & Study on Clinical Research Participation (CISCRP)
Phone: 617-725-2750 x 404
One Liberty Square, Suite 1100
Boston, MA 02109