Wednesday, 18 July 2018

The Horrifying Truth

It was a freezing cold morning, and I was lying in my nice warm bed, waiting for the coffee my son had offered to bring me.

He was taking an unusually long time, and I thought back to our conversation.

As well as offering me coffee, he'd asked me to cut his hair (he hasn't had his hair cut in about 12 years) and talked about the upcoming taekwando competition (neither of us has done taekwando since before his last haircut.)

The whole conversation had been an hallucination, or possibly a dream.

That's when the horrifying truth hit me. There was no coffee being made!


  1. Dear Iris- please know you're not alone. Many of us have had odd experiences with our Lupus involving cognitive issues. Hopefully it's just an isolated and temporary "mind-flare".
    Please see your rheumatologist if you need to.. there's always prednisone. And for the other issue, they make auto coffee makers! Love & light! JJ

    1. Thanks Julie. I've had a few hallucinations before and been to the specialist. It's all "just normal lupus" and nothing to worry about.

  2. Hello
    I am T
    I am 48 I was told I might have lupus when I was 26 after having a septic joint (hip)
    out of nowhere.
    The tests were borderline
    I refused to have lupus so I went
    but I have had many other issues over the years. I'm just here to talk I am afraid to see the doctor about lupus.
    I am now have g to have surgery for torn meniscus on both sides, bakers cyst and I have bursitis. not to mention the cognitive issues and vertigo.
    I know you are not a Dr I just needed to tell

    1. Being afraid to see the doctor about lupus is completely understandable. I tried to live in denial for years - it didn't work. The one thing I can tell you is this - if you have lupus, it's much better to go to the doctor and get it treated, than to leave it untreated and out of control. Uncontrolled lupus can do a lot of damage.

  3. I was diagnosed with Lupus 4 years ago. I went to my Dr. With a concern over a lump in my left breast. A biopsy was ordered and although it was not cancer, I was shocked to be told I have lupus. Lupus profundus. I have since in the last year also been diagnosed with COPD and now I am taking Serevent every 12 hours. The difficulty with breathing and fatigue have been very hard. Frustrating for both me and my family. I am 50 years old. Not how I was hoping to spend our golden years.


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