Thursday, 6 April 2017

Plans for World Lupus Day

Lupus support group leaders from around the world
met in Melbourne the day before Lupus 2017 Patient
Information Day.
One of the things we talked about in Melbourne, when representatives of lupus support groups from around the world met, was the plans the World Lupus Federation has for World Lupus Day.

World Lupus Day on 10 May this year, will have the theme "Lupus Knows No Boundaries."

I'm sure we can relate to that - it doesn't follow the boundaries of geography or race. There's no boundaries on the "surprises" we can get from it either.

But you know what, lovely lupies? There's no limits or boundaries on the number of times we can get up and fight on when this stupid disease knocks us down, either.

Look out for a global study on the impact of lupus that's coming up. The report will be posted on the World Lupus Day Website.

And keep an eye on Twitter.  If you don't already follow @TiffanyAndLupus  and #LupusChat yet, now is the time to do so.  Tiffany and the team are hosting a discussion every Sunday in May, at 3pm American Eastern Standard time. (I think that's GMT -5.) This year will be the fifth anniversary for #LupusChat - so wish Tiffany and the team a happy birthday when you join them.

That's the big, world-wide stuff.

If your local organisation has something planned you'd like to tell the world about, please let me know.  In the lead-up to World Lupus Day, I'll publish whatever events I hear about.

I don't yet know what we're doing here on Sometimes, it is Lupus.  I'm open to suggestions.  Last year, we had our own survey, before that we established the Warriors Wall, and before that the Lupus Business Directory.  If any lovely lupies out there have any ideas, on what to do next, you know what to do: comment on the blog here, or on social media.  Oh, and now that I'm on Patreon, I've decided that if I can get $500 per month from patrons, I'm going to sponsor the local World Lupus Day lunch.  Otherwise, I'll just organise one and everyone can pay their own way, as usual.






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