Monday, 9 February 2015


Image flower with text "Lupus, you're bad enough alone. Why do you bring your friends with you."A new rheumatologist has meant a new look at my condition.

There was good news and bad news.

Let's start with the bad news.

I don't just have lupus. I also have fibromyalgia and osteo arthritis.

Is anyone surprised?  Lots of lupies have other conditions, especially autoimmune conditions, as well.  Frequently, it's not just lupus, it's lupus and some other stuff. It's just a part of the whole package.

Now for the good news.

My lupus is actually inactive at the moment.  My current symptoms are all fibro and osteo. (Except for the dry eyes and mouth - those are sjogren's symptoms.)

That means, over the next few months, my lupus drugs can be reduced.  First to go will be sulfasalazine.  Then, over several months, my methotrexate will be reduced to about two-fifths of my current dose.

A bonus is that the methotrexate may be contributing to my brain fog, so I might have a clearer head as the dosage is reduced.

To treat the fibro, I need to increase my exercise.  So, I now need to have a 20 minute walk each day. I also need to get re-started on hydrotherapy. (I haven't been to a pool since my move.  Time to get moving.)

1 comment:

  1. Let's focus on the good news : you can reduce your drugs, and you can (must) increase exercise. Hugs, Claire


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