Yesterday, I saw a rather disturbing news story about a "carpark vigilante" leaving a nasty note on the car of people who had a valid disabled parking perming.
I asked on the Sometimes, it is Lupus Facebook page if any lupies had similar experiences.
A disturbing number of people responded that they had been verbally abused, given strange looks, challenged about their right to use a disabled parking space, etc.
I realise "carpark vigilantes" think they are doing the right thing. They think people are taking disabled parking spots without needing to.
The trouble is, they don't understand a simple, basic, truth. You can't always tell if people have disabilities. Many are not obvious. Many are not even visible.
Lupus, like many other chronic illnesses, is not obvious to the casual observer, yet it can make mobility a painful, fatiguing nightmare.
To get permits, we need doctors to agree that we need them. It's not automatic. Despite the popular myth, they are not "too easy to get".
Permits are issued to people who genuinely need them, whether or not that need is obvious to a random stranger in a carpark.
So to all potential "carpark vigilantes" out there, on behalf of all people with invisible, disabling, conditions:
I curse you "carpark vigilante"
I curse you,
and beg God to give you
just for a few weeks.
May you feel like you are dragging
tonnes of weight with every step.
May being awake be enough
to make you feel you have run a marathon.
May every joint of your body
give you agony.
May you constantly need to urgently
find the facilities,
May your stomach churn and
And may you meet someone like
yourself in the carpark.
I only want this for you for a few weeks,
not even you,
deserves it for a lifetime.