Sometimes with lupus, or with any chronic illness for that matter, the struggle of just living daily life gets hard.
We all need to find things in our lives that make facing up to the struggle against our illnesses worth while.
For me, the big thing that makes it all worth while is my family. When I was first diagnosed, and I read about just how bad lupus could get, I promised myself I would do everything within my power to keep as well as possible until my children reached adulthood. Of course, once they reached adulthood, I suddenly found myself with a grandchild. Spending time with my granddaughter makes any day worth while, no matter how sick I am, no matter what else is happening. (My adult "children" are still very important to me as well, of course.)
Creative expression is another thing that makes it all worth while. Even though lupus is affecting my mind lately, I still get to enjoy writing, and baking, and I'm slowly working on getting my sewing and arts and crafts space useable.
Feeling that I'm doing something of use for someone else is also very important to me. My biggest fear is of becoming "useless".
Another thing I've discovered recently, is gardening. I'm not very good at it, and a lot of plants die, but I'm learning as I go. I'm in the process of getting a rainwater tank, so I can actually have enough water for my garden. (There's issues with that, the tanks are halfway installed and now a neighbour says they're infringing on her land - the boundary is very unclear.) All of life has its frustrations, even, sometimes, the things that make getting up and facing the day the illness worthwhile.
Everyone who has a chronic illness has times when they just wonder why they bother taking all the medications, getting out of bed, and trying to just get through the day. And we all have to find those things that are so important we will get up and fight for them.