- It's faster to swallow a handful of pills at once than to swallow each pill individually.
- When you do (1) sometimes the pills will get stuck half-way down your oesophagus, and cause a horrible pain in your throat/chest that will not go away for hours, and nothing seems to be able to clear it.
- Even after experiencing (2), you will still do (1) because the amount of time you would spend taking pills individually is ridiculous.
- A diagnosis does not mean you're getting better. It does mean that you're going to spend the rest of your life paying money you don't want to spend on things you wish you didn't need.
- You are called a "patient" because you have to be patient while waiting at your GP's surgery, at your specialist's surgery, at the chemist, at pathology, at medical imaging, waiting for results, waiting for appointments.... Just learn to be patient. Because now, you're a patient.
- For most people a diagnosis of "lupus" is no longer a death sentence. It's a life sentence. Whatever you plan, you have to take into account the possibility that it will be a "bad" day.
- No matter how sick you are, someone will tell you how good you look. Sometimes, they're trying to be nice. Sometimes, they actually think you're not really sick and are making it all up.
- Simple tasks require long rests to recover. Complex tasks need to be broken down into smaller, simple tasks, with long rests to recover.
- No matter what you used to do, your body is going to rebel if you try to do the same old things.
- Some people will walk slower so you can keep up with them. Some will stop from time to time for you to catch up. Others will just keep going and not even realise they've left you behind.
Saturday, 29 June 2013
Chronic Illness Lessons
Living with a chronic illness has taught me a lot of things. Here are some of them: