
On Saturday I'm going to the Lupus Association Queensland World Lupus Day lunch.
With all the rotten stuff lupus does to me, it sort of seems odd that I want to get together with other lupies and celebrate.
But I've been thinking about it, and the reason I'm just as excited about this lunch as I was about getting together with my family and friends for my birthday dinner last night, is that I really do have some things to celebrate.
Here's three things I'm going to celebrate on World Lupus Day:
- I'm not alone. The other people I'm getting together with know exactly what it's like. We're all there for each other. These are people I might never have met in any other circumstances, but we share a bond. Like soldiers in the trenches, we've fought alongside each other, and no-one who hasn't been there can fully understand what we've been through.
- I'm still alive. The wolf may have taken some lupies since last World Lupus Day, but it hasn't taken all of us. This is a celebration of life, but also a defiance of the Big, Bad, Wolf. For those of us who get together, our dark fairy tale isn't over, but we've come a long way through it. The wolf has been stalking us, may even have attacked a few times, but we've fought back. So far, we haven't been defeated.
- Lupus research has come so far in recent years, that it's only a matter of time before we're celebrating a cure. And the celebrations, world-wide, on that World Lupus Day are going to be phenomenal.
great post. We have lupus... Lupus does NOT have us.
ReplyDeletesounds silly but I guess it is my way of writing my defiance to lupus. I am, I am not just lupus
The second part of the first point could be a fourth thing : you're strong, " like soldiers in the trenches".
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