Well, the first thing I would like to say is : when you don't know something, you shut your mouth, you look, you ear, and you learn. If something is hard to understand, you ask. If this guy had read closely your blog, he would have understood what is lupus and what is life with lupus. Secondly, if you write a comment (which is more a value judgment), at least you could have the courage not to hide behind anonymity.
It's OK Claire, it was a great example of the attitude many people do have towards invisible illnesses, and a great excuse to talk about that attitude.
Very well said Iris! I forwarded a link to some lupies I think will truly appreciate what your saying and enjoy your blog (like I do)You know, you nailed it, I think it's that " one minute fine, one minute sick" thing that really makes it hard for our loved ones to get what we're going through. Of course the "you don't look sick" thing is a roadblock all people like us with invisable conditions face on a daily basis. Thanks for writing your blog. There is nothing in the world more comforting then to know that someone shares your special thoughts, that they are not unique, you are not alone, and that you have a bond with someone who is going through the same issues and just trying to manage their health and their lives as best they can.I can't wait to check out your books and more of your blogs. I like that you write often and that your blog is always relevant.Sincerely, and Gentle HUGS, Julie
Thanks Julie. So often we can feel like we're alone with this horrible illness - yet, we actually do have so much in common.
It appears to me that this was just some spam comment. That domain doesn't even work. No need to get worked up over something so silly anyways.
Hi Nerdgirl, This is probably spam, but I used it because it's an issue people with invisible illnesses come up against a lot - real people (sometimes people who are very close to us) who do believe we're just hysterical.
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