Tuesday, 1 May 2012

Petition for Approval for Benlysta Use In Australia

The Therapeutic Goods Administration has rejected the application from GlaxoSmithKline to have Benlysta approved for use in Australia.

If you want to sign a petition to have this reconsidered, here is a link: http://www.thepetitionsite.com/271/988/810/demand-treatment-for-australian-lupus-patients/  

There's two big issues here:
1. Benlysta might not help all lupus patients, but it could help some.  For those people for whom this is the best possible treatment, it ought to be available.
2. New lupus treatments cost a great deal of money to develop. If the treatments can't then be used, there's not a lot of incentive for companies to continue to develop treatments (or perhaps ultimately a cure.)


  1. Benlysta was approved in Spain a year ago. For me is like if it had never been approved though. The cost of the treatment is so high that my hospital will not give it to me :(
    My specialist and myself have been fighting for my right to get Benlysta despite the price.
    Because it's human beings we talk about here, money should not be an issue!!!

    1. I'm with you, I think human beings should come ahead of money. But that may be self-interest, after all I am a human being. Perhaps if I were a dollar coin, I'd see things differently. I hope you and your specialist win the battle!


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