Monday, 19 December 2011

Fighting the Flare

Well, I haven't posted anything for a while.  In fact, that's probably how it will be for some time to come.

Since my lupus is flaring, I need to try to conserve my energy wherever I can - it's the nature of the beast that I have to budget energy carefully at the best of times, and right now isn't the best of times.

Over the last couple of days, I've put a bit of energy on the "credit card", done just that little bit extra because there were things I really wanted to do, and because there were things I really needed to do. The problem with the credit card is it all needs to be paid back with interest. So yesterday, I slept. Today, I've also slept a fair bit.

How am I preparing for Christmas with this going on? Slowly. I'm also trying to plan ahead. Fortunately, I started getting presents very early (working on the theory that I want to avoid shopping centres in the last couple of weeks before Christmas anyway.) We're having Christmas dinner at my place - and the menu is cold meat and salad.  I am doing my Christmas pudding and Christmas cake, but they're being done ahead of time, just one thing a day this week.

My rheumatologist is away for a couple of months - so the earliest appointment I could get is mid-February. Meanwhile, my pain and fatigue are flaring, which my GP is trying to manage by increasing my steroids. The increased steroids cause fluid retention problems, which gives me headaches, so I'm taking more steroids and more diuretics. And neither of those make me feel wonderful! My GP's also adding magnesium to my cocktail of drugs - but I have no idea what that is meant to do.

So I'm still here, and I'll try to find the energy to post a couple of times per week, but that's likely to be the most you'll hear from me, at least for a while.


  1. This time of year is hard for us Lupies. So much to do and our bodies don't care that it's a holiday. The timeouts are important and I'm glad you are taking them. I hope you enjoy your holidays and get through them as pain free as possible.

  2. Thanks for the great lupus information! I have been fighting with my SLE lupus symptoms for many years and it's good to hear positive words from others with the lupus disease.


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