Friday, 16 September 2011

Not Happy

I've had my monthly visit to my doctor today. (And now I'm back to fortnightly visits.)

My lupus is flaring again. (Well, really I knew that.) My pain, fatigue and depression are all getting out of control.

In an effort to get my pain back under control,  the doctor's increased my prednisolone (steroid) from 2mg per day to 15 mg per day. I've been higher than that, but it was hard work getting it down to the 2mg level.

She's checking out the process of referrals, but sometime fairly soon, I should be going to visit a physiotherapist, to start hydrotherapy (physiotherapy exercises in warm water.)

And she wants to know if I'm doing too much!

This is what upsets me. How much is too much? Most of the time, I feel like I'm not doing enough - at least I'm not doing all the things I want to be able to do. Maybe I am doing too much, but I can't find anywhere in my life where I'd be willing to cut back on what I'm doing.

But if I can't cut back on what I do, and get some rest, there's always the risk of being forced to cut back even more when I simply can't do anything.

I absolutely hate lupus!

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