Tuesday, 28 June 2011


One of the odd things about lupus is that body temperature is hard to manage.

When everyone else is cold - I am hot. When everyone else is hot - I'm cold. I have my own climate zone. I need to always know where my jacket and gloves are, and then have the air-conditioner ready to make it cool enough to sleep at night.

It makes it hard to agree with the kids on what temperature to set the air-conditioner in the car.

When I'm quite well, my personal temperature does not seem to be much different from everyone else's but when I'm fatigued or in pain, I'm always at a different temperature to everyone around.

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