One of the problems with having lupus is limited energy. If you want a wonderful explanation of what the energy limit of lupus is right, read the "spoon story", at butyoudontlooksick.com . I couldn't explain it any better.
Since I've started working again, my limited amount of energy has to go further than it did before. This takes its toll on things like housework, family, friendships. There's less of me to go around. That is not a complaint - I love my work - I would do it without pay if I had a way to support myself.
The internet is proving to be incredibly useful. I can buy my groceries online if I don't have the energy to walk around the supermarket, and I'm learning that I can find just about anything else I need online as well. I just have to be willing to wait for delivery.
I love to get together for coffee with friends - but again it takes energy. Sometimes email and facebook are the next best thing. It's not a great substitute for actually spending time together - but it does allow me to maintain friendships even on the days (or weeks), I don't have the energy to do anything but lie on the couch.